Endometriosis and the Push for Diagnosis

When you search for endometriosis on the internet, it’s not easy to understand. Symptoms listed are vague and contradictory, and asking your doctor about it might not result in a test or diagnosis right away. I spoke with Shayna S. about her struggles with endometriosis, both with symptoms and with receiving a diagnosis.

Before surgical removal. Photo courtesy of Shayna S.

Before surgical removal. Photo courtesy of Shayna S.

“I had it for five years, and was told it was normal period pain… I went for ultrasounds but it couldn’t be detected.” She went on to explain that she stopped experiencing symptoms during pregnancy, but shortly after having her baby by emergency C-section, the pain became much worse. She was sent to an OB/GYN who was boggled that the scar tissue wasn’t seen during her C-section. Shayna then had surgery to remove the scarring which helped with pain, but didn’t completely rid her of it.

“[Endometriosis] is extremely painful. It feels like my insides are swelling up.” She experiences this pain for a week during ovulation, and then throughout her period. About 2-3 weeks out of the month. “I use one of those rice bags that can be microwaved for the pain. But sometimes, I can’t drive or even get out of bed.”

Some sources argue that endometriosis is not hereditary, while some state that it is. Regardless, Shayna’s mom was diagnosed with it along with a few other people in her family. Even knowing this, her doctors insisted it was regular period pain, but she noticed it getting worse as she got older.

It could have [prevented] a lot of it from spreading if [the doctors] would have listened to me earlier when I was younger and dealt with it then… I wish there was more research on treatments. A lot of doctors will say it’s only period pain… just keep pushing them to get it tested.

Her final advice to anyone wondering if they may have endometriosis is to keep pushing to be checked.